+05.24.2007 < 548 days ago
id like to say that its been an uneventful last few days
but if i said that
id be lying
ms.elizabeth actually gave us some goods news for a change the other day
the doctors informed us not 24 hours after they moved to to brakenridge
that she no longer had a bowel obstruction
and surgery was off the table
her oxygen needs were the lowest they’ve been in
oh i dunno
three weeks
things were looking VERY positive
we even sort of got to relax a little
Alyssa even got to hold her for the first time EVER
and then…
the main event started early this week
she started swelling
which is nothing new really
then
we got a phone call on wed. night
informing us that she had to go back on the hifi ventilator
aka the machine i want to beat fiercely with a lead pipe
because one of her lungs had collapsed a little more
and she “needed more support”
and then
the swelling got worse
like WAY worse
at least twice as bad as it was a week ago
during the preliminary stages of the bowel obstruction
worse than when she’d developed the blood clot
and now
they have her on contact isolation as well
with a well established biological perimeter of about two feet
[which you cant cross without gowns and gloves]
gues what they think she has…
yep
NEC
the docs at brakenridge stopped the antibiotic they were using to treat her and her sister with at seaton
only a few hours after she arrived on sunday
AND
surgery is back on the table
i do not have to
nor will I tell you
the risks and long term effects we are looking at
if she has to have surgery
i will say
that if they HAVE to surgery her up
and she survives
[she’s obviously not going anywhere, shes as tough as her parents]
the long term prognosis is any hundred things that we
and no one else would ever hope for…
really this would not have been so bad
if it didn’t all feel like a good episode of lost
ya know where they actually pull the curtain back a little and say
“ooo look.
here’s a few frames of the monster…
isn’t that cool?...
and
here’s…
a kick in the junk!
now you have million more questions that we aren’t going to answer.
EVER”
also I have decided that the “nicu roller coaster” analogy they use constantly
sucks
i like roller coasters
i like lost
ALOT
for the ride
to see what happens next
where everything is going
and the nicu
i HATE the nicu (not the nurses or doctors though)
i hate the ride
i want to get off
more than anything
but guess what?
we’re only a little shy of being half way
i wonder if anyone else wants to throw up… yet.
on a mildy more positive note
young amelia is recovering nicely
[id wish she’d stop rubbing her sisters face in it]
rumor has it that she might be extubated prior to completing her remaining 4 days of contact isolation
although i doubt it
but we’ll see
her doing well is like a slap in the face sometimes
it was almost easier to deal with when we felt like they were both screwed
in the meantime
im working on creating a newer better analogy
than the nicu roller coaster
like
being spun in circles while getting beaten with pillows and dead fish,... at random. forever.
but thats obviously a work in progress
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